December 25, 2011

1st Christmas


Christmas in the NICU



                                                                                   Hospital day 255
                                                                                    8 months 11 days

October 31, 2011

July 14, 2011

Accommodation/Y.A.N.A

I'm staying in an apartment that is funded by Y.A.N.A http://www.yanacomoxvalley.com/ . It's amazing after being at Easter seals for 6 months.  







July 07, 2011

Hailey/Twin B's hospital visit

Hailey did really well there was No set backs with her. She stayed in the NICU for 2.5 months and came home two weeks after due date :).

                                                     Cuddling a tiny crying baby<3

                                                Hailey gives a little premie smile :)
First feed

1st cuddle
                
3 days old on CPAP
 

Blue bird means home :)






Hailey's Hospital Stay 93 days







May 03, 2011

Hannah/Twin A's Story

I didn't blog when they were first born, I really wish I had. These are pictures of Hannah from birth till today's date(march 2012)



A month old- Poor little heels are all beat up from blood gasses checking how he breathing is


Before surgery - Black spot on belly in NEC
After surgery-with Ostomy bag
 Hannah got NEC(Necrotizing Enterocolitis) her first week of life. Thankfully she only had a 3rd of her bowel removed leaving plenty left. She did not have her bowels reconnected during surgery so she had to have an ostomy for a few months. Hannah would also grow slower because of this :( adding to the slow growth from the heart problems. 

First Hannah cuddle .. a months old :( 






























The best feeling in the world
Second time cuddling Hannah (2 months old), first time holding both of them at once.























Two and a half months old - June 02,2011 <3

HUGE growth spurt in 2 weeks- June 16,2011

Finally made it into a crib 2.3months - June 29,2011

Augest 1,2011/4 months old - Still NO CHANGE


August 16, 2011 Change FINALLY!
Hannah was finally stable enough to have her PDA(small hole in heart common in premature babies).












 "hand cuffs" for after sugery

First time taking the breathing tube out - August 19, 2011/4months - PDA closure really helped her

august 28, 2011

August 25,2011 Hannah had surgery to reconnect her bowel and to put in a G tube for long term feeding.








<3 <3 <3
Finally 5 months old and starting to get some fat on her - September 2011 
                  <3 <3 <3 






September 7,2011 - Very Jaundice
September 9, 2011


September 19, 2011



High flow - September 27, 2011

September 20,

Hannah

Hailey

   













  September 30, 2011
          On the same day







October 1,2011 - 6 Months

Heart surgery to close her large VSD - October 12, 2011

October 13, 2011


October 17, 2011 -Looks better then ever

October 19, 2011 - Surgery helped her so much


Hannah breathed on her own for all of November

December 2011 set backs
Back on CPAP


                                        Sisters love, sucking on each others hands <3

December 12, 2011






Glasses January 10, 2012

Using oxygen with premature baby can cause eye damage, Hannah near sighted because of it.














Helicopter ride
Hannah was transferred to Nanaimo hospital trying to prepare her for home. She only lasted 5 days in Nanaimo before being sent back to B.C womens/Childrens hospital. There was serious concerns regarding her respiratory issues and deterioration from her oxygen being weaned.
At the time of being transferred back, Hannah needs to work; weigh gain, BPD(lung deases) and Pulmonary hypertension.







Helping Heart phots

       
        As of February 4th, 2012


     Hannah has been intubated 132 days, on cpap 42 day, on high flow for 43days and She still is on low flow. Her left vocal cord is 'sluggish' making her have a weak crackly cry. Her active problems are; sever BPD(lung disease), Pulmonary hypertension, a few smaller VSDs, short gut, reflux, weak cry. 

But they still think were stable enough for Nanaimo then home.

Nanaimo again, this time for 6 days - February 2012


This time they sent us back for the exact same reasons as last time. This time I was told that hannah's blood gas said she has high CO2. She was put on Bipap as soon as she got to B.C Womens/Childrens.  The doctors told me they didn't know if it was the lungs or the heart causing her the troubles. Cardiology re-looked at her heart saying that wasn't the problem. They changed her g-tube(that goes into the stomach) to a gj-tube(witch now starts at the beginning of the bowel). The change of the tube was suppose to help with her reflex making it less likely for her to get fluid in her lungs. Hannah got Pneumonia right after being transferred back to Vancouver.

 
febuary 13,2011 - 8 months

back on bipap February 19, 2012


                                     Feeling good enough to kick her sister in the face <3


Intubated again march 13, 2012 - 11 months old